Monday, 26 December 2011

On the 2nd day of Christmas ...

It seems obvious for the 2nd day to talk about twins. I know several sets of twins who both have Down's Syndrome, but today I'd like to mention a family who have one twin who could use our thought and prayers.

May I introduce the Hext twins, 5 year old Harvey and Spencer who you may have seen on this years Noel's Christmas Presents when their family went on a trip to Lapland and the boys met another set of twins, Jedward.

Harvey and Spencer Hext
Spencer and Harvey are identical twins who have Downs syndrome, which makes them fairly unique as there are only a handful in the UK, but Harvey is even more unique. In June 2010 he was diagnosed with stage 4 Neuroblastoma, a very aggresive childhood cancer and he is the first documented patient in the world to have Down's syndrome and be treated for it, meaning that there are no comparable reference points for his treatments, as the medical team have no experience on the amounts of drugs his modified genetic makeup will cope with.

Harvey has amazed his family and his doctors with the way he has coped with the chemotherapy and MIBG therapy he has been given, he has also recovered very well from a 14hr operation to remove the primary tumour in his stomach, but throughout the awful treatment he has had to endure, he has remained spirited and inspirational. Sadly though,

Harvey has not responded to the chemotherapy as everyone had hoped he would and although his consultants are still treating Harvey's cancer as cureable at the moment, treatments in the UK for Neuroblastoma are limited so his family are currently looking to raise £300,000 as it is most probable Harvey will need treatment abroad that is not covered by the NHS.

If you would like to donate to Harveys fund please do so using this link FAN Harvey Hext  (Donating through this page is simple, quick and secure and if you are a UK taxpayer and give Gift Aid consent the charity will receive extra at no cost to you.)

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